thepaperwitch's review

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challenging dark emotional informative medium-paced

4.0

An in-depth look at what it means to have IBD and Crohn's disease. Of course, this is one perspective, but it is very eye-opening and informative. It is memoir-like in her journey through her diagnosis, flairs, and recessions, but it also shows the numerous hardships and barriers that the healthcare system in America has that makes treatment difficult--and this is from a person with a lot of privilege compared to most of the country. There are a number of adjacent issues that people with chronic illnesses have to deal with, especially relating to their mental health, and I really appreciated that she dives into these issues. The book also has appendixes that focus on navigating these issues including: reporting a doctor, finding a good therapist, mental health resources, chronic illness and anxiety, how to talk about mental health medication, chronic illness and depression, medical PTSD, and wrongful termination. 

Pick this up if you or someone you know deals with chronic illness and/or IBD or Crohn's disease specifically. I'd also recommend it to anyone looking to learn a little bit more about the chronic illness perspective. 

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joannakwilliams's review

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dark medium-paced

3.5

I was hoping for a chronic illness memoir. This is more of a memoir crossed with a self help book for people first dealing with having a chronic illness. I also didn’t quite vibe the style - it felt like it was written by a journalist in the 2010s. 

That said, there was a lot of vulnerability about sharing her the ups and downs of her experience. I thought the majority of the memoir parts of the book were quite engaging. But I think I would recommend Samantha Irby writing over this book.

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anathema_thorn's review against another edition

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emotional informative reflective medium-paced

3.25

This was part memoir, part white lady telling the reader what to do. I wish it was much more of the former and none of the latter, but the author thought it was more worth the space to provide advice for people beginning their chronic illness journey than to offer a more complete version of her own story. 

The parts of her chronic illness story she includes are compelling, like the initial chapters detailing her first hospitalization. They resembled mine so closely that I was hooked, only to be disappointed later on. She introduces important information about Crohn's disease with an unpredictable cadence throughout the book, in a way that tbh I think would make it difficult for someone new to learning about Crohn's to grasp what the disease entails. For crying out loud, it took her until at least halfway through the book to bring up immunosuppressant medication! There aren't a lot of good IBD-centric memoirs out there, and she clearly has the capacity to write something informative, but she didn't decide to make a more comprehensive memoir that makes Crohn's more understandable. Sigh.

While the advice, frankly, is often good, the language it is couched in is quite prescriptive and sometimes is condescending...maybe it strikes me that way because I'm already well acquainted with being chronically ill and someone who is newer in the journey might see it another way, though. 

Getting more into the "white lady" part of it. From the writing style it is clear the author has a journalism background. While she acknowledges her privilege in a pretty standard way, it rings pretty hollow, considering how she goes onto casually drop the names of the publications she works for, the benefits she has, and vaguely alludes to how much her monthly salary is. The way she mentions how certain health outcomes affect people of different races or other demographics different from her own sounds like she was checking off a box rather than compassionately thinking about how chronic illness affects these communities. Also...through all of this she used the word "minorities"...c'mon, gurl, it's the 2020s. With all that in mind, her advice about how to choose doctors, among other things, sounds condescending, because while most people DO deserve much more considerate doctors and more thoughtful care, most people can't be choosy and frankly are lucky if they can even see a specialist regularly (obviously I wish that was different).

But maybe she realized a chronological telling of her life wouldn't have been as compelling as a combination of advice and memoir. Idk. Ultimately it's a really personal choice to even write a memoir, but for me I thought this story would have been more impactful if told very differently.  

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madeofmatter's review

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challenging dark emotional funny hopeful informative reflective sad tense medium-paced

5.0

Beatifully written retelling of life with chronic illness. An incredibly useful resource filled with helpful information, tips on how to deal with various situations and tailored humour that hit home. I cannot recommend this book enough.

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ivi_reads_books's review

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emotional informative sad medium-paced

4.5

 This book is part memoir, part practical guide to navigating the U.S. healthcare system and advocating for yourself. It offers valuable insights on finding community, hope, and managing your health by focusing on what you can control.

The author shares her story with honesty and courage, offering readers both guidance and hope in their own health journeys. 

I recommend it to anyone living with a lifelong illness, as well as their family members and friends 

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meliroo's review

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informative reflective

4.25


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nhackley's review

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emotional hopeful informative inspiring reflective medium-paced

4.5


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kyullua's review

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inspiring reflective slow-paced

3.0

I wished it had focused more on the memoir part. I loved those.
What made me lower the score was the focus on the american healthcare system, which while I understand the needs to some of the readers I expected to hear more about coping and living with IBD and someone with IBD myself
I related to a lot of what the author said but felt like the developing “connection” (if you can call it that) was cut halfway through it with a lot of info regarding the medical system there

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atokuyama's review

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emotional informative reflective fast-paced

5.0


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rockyroadbutch's review

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emotional hopeful informative inspiring medium-paced

4.75


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