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batsyxgirl's review against another edition
3.0
3.5 ⭐️
this book has some really great information about how endo works and affects all the different systems in your body in a scientific but still easy to understand way. they also have some great suggestions on ways exercises and things you can do to help manage your endometriosis symptoms. but i have 2 main issues with this book:
1 - they put a big focus on money and say things like ‘patients may say they can’t afford treatment and will put it off, but putting it off may mean longer treatment later down the track. it’s better to just pay it now and put everything else on the back burner for now’ uh hello, what kind of fantasy world are you living in? the cost of living is EXPENSIVE, and people can’t just stop paying their bills. a lot of people with endometriosis are restricted in their work because of their symptoms and therefore won’t have as much disposable income as someone who is healthy/has no health issues. it’s not easy for people to just afford the type of treatments we actually require. a literal quote from the book “supplementing your insurance coverage or paying a therapist directly right now may seem pricey, but weigh it against your suffering and your health before you decide you can’t afford it” what gets me most is the BEFORE YOU DECIDE YOU CANT AFFORD IT. i don’t know if it’s just me but i find that highly insensitive. we aren’t just choosing and deciding we can’t afford it.
2 - there’s a chapter in the book talking about how endometriosis cases are rare in teens. the authors talk about their extensive training and expertise in the field of endo, yet still wrote that chapter? it is widely known in the endo community that it takes an average of 12 years to get an official diagnosis, so saying that there are fewer cases diagnosed in teens probably isn’t a reflection on it being a rare condition in teens but more about the fact that endo isn’t as widely educated about or known and it takes FAR TOO LONG for people to get a diagnosis. for most people, we know that onset of symptoms usually start from the time you get your first period, and generally you’re a teenager at this time, meaning that endometriosis was present, just not diagnosed, so i find the fact that they wrote that chapter to be incredibly misinformed.
this book has some really great information about how endo works and affects all the different systems in your body in a scientific but still easy to understand way. they also have some great suggestions on ways exercises and things you can do to help manage your endometriosis symptoms. but i have 2 main issues with this book:
1 - they put a big focus on money and say things like ‘patients may say they can’t afford treatment and will put it off, but putting it off may mean longer treatment later down the track. it’s better to just pay it now and put everything else on the back burner for now’ uh hello, what kind of fantasy world are you living in? the cost of living is EXPENSIVE, and people can’t just stop paying their bills. a lot of people with endometriosis are restricted in their work because of their symptoms and therefore won’t have as much disposable income as someone who is healthy/has no health issues. it’s not easy for people to just afford the type of treatments we actually require. a literal quote from the book “supplementing your insurance coverage or paying a therapist directly right now may seem pricey, but weigh it against your suffering and your health before you decide you can’t afford it” what gets me most is the BEFORE YOU DECIDE YOU CANT AFFORD IT. i don’t know if it’s just me but i find that highly insensitive. we aren’t just choosing and deciding we can’t afford it.
2 - there’s a chapter in the book talking about how endometriosis cases are rare in teens. the authors talk about their extensive training and expertise in the field of endo, yet still wrote that chapter? it is widely known in the endo community that it takes an average of 12 years to get an official diagnosis, so saying that there are fewer cases diagnosed in teens probably isn’t a reflection on it being a rare condition in teens but more about the fact that endo isn’t as widely educated about or known and it takes FAR TOO LONG for people to get a diagnosis. for most people, we know that onset of symptoms usually start from the time you get your first period, and generally you’re a teenager at this time, meaning that endometriosis was present, just not diagnosed, so i find the fact that they wrote that chapter to be incredibly misinformed.
cmarlow's review against another edition
5.0
This book is integral to patient education on the disease process and what patients can do to help heal themselves. Highly recommend to anyone looking for more information on how to live with endometriosis!
joluyo's review against another edition
2.0
This book is probably a lot more useful to you if you are American, and, as other reviewers have said, wealthy. The authors strongly recommend physical therapy as a treatment procedure for endometriosis, but unfortunately PT isn’t generally offered as treatment for endo in the UK. The sections on insurance and USDA-certified products also weren’t relevant to me as a reader based in the UK. It feels like a lot of the advice given in the book assumes you have endless resources, money and time. For example, the chapter on endo and the environment advises you to “throw out every product currently in your medicine cabinet and order anew from sources that only sell clean personal care products”. Not only is this expensive and unrealistic for many, it’s also incredibly wasteful.
I actually laughed out loud when the “reclaim your life” chapter advised readers that “it is a good idea to go back to the generalists who misdiagnosed you, bringing copies of your operative and pathology reports, and gently educate them”. Can you imagine, as a British person, making an appointment with your GP in what is already an overburdened, strained and underfunded medical system – just to ‘gently educate’ them that they misdiagnosed you? This section just seemed like the authors, although they are medical professionals, have a very unrealistic view of the medical services available to the majority of people who aren’t wealthy and American.
I read this book in 2021, just three years after it was published, and already found that many of the online resources were out of date or no longer accessible, such as The Integrative Women’s Health Institute website.
The parts of the book I did find useful were the nutritional advice and the therapeutic exercises and I’ve been following this particular guidance with positive results so far. This book wasn’t for me overall, but I’m sure that some will find it helpful.
I actually laughed out loud when the “reclaim your life” chapter advised readers that “it is a good idea to go back to the generalists who misdiagnosed you, bringing copies of your operative and pathology reports, and gently educate them”. Can you imagine, as a British person, making an appointment with your GP in what is already an overburdened, strained and underfunded medical system – just to ‘gently educate’ them that they misdiagnosed you? This section just seemed like the authors, although they are medical professionals, have a very unrealistic view of the medical services available to the majority of people who aren’t wealthy and American.
I read this book in 2021, just three years after it was published, and already found that many of the online resources were out of date or no longer accessible, such as The Integrative Women’s Health Institute website.
The parts of the book I did find useful were the nutritional advice and the therapeutic exercises and I’ve been following this particular guidance with positive results so far. This book wasn’t for me overall, but I’m sure that some will find it helpful.
kasiowakasia's review against another edition
3.0
Książka dobra dla początkujących w temacie - takich jak ja. Jest tu kilka przydatnych informacji, chociaż sekcja o operacji i informacje o antykoncepcji były bardzo krótkie. Sekcja o odżywianiu była słabo zresearchowana, znalazlam tam pewien błąd który może być szkodliwy. Dużo gadki szmatki. Podsumowując: bardzo rozwleczony, amerykański poradnik który trzeba czytać z duża szczypta sceptycyzmu.
sianlouiset's review against another edition
4.0
Great to see a well structured, informative book on the disease but found the writing difficult to digest easily. Found myself stopping and starting over a period of time. Still have unanswered questions but I learnt more from this than I have from my doctors and found the statistics included in the writing fascinating. Still a must read for all endo sufferers and those close to them.