A review by elevetha
Alex: The Life of a Child by Frank Deford

3.0

The terribly heartbreaking story of young Alex Deford, who suffered and died from cystic fibrosis. Written by her father, Alex's story is one of a crippling disease and tutus. Of painful therapy that hurt her parents just as much to impose and deliver her therapy as it was for her to take it. Of week-long hospital stays. Of root beer Alex never drank. Of dancing in the hospital halls, all the while hooked to an IV pole. And of Alex's incredible personality and strength.

"I've often thought about that, Mother. Just what it would be like not to have a disease. I wouldn't even ask for forever. Just for a day I'd like to wake up one morning, and not have any pain or be sick or anything. Just once to be free."