thepaperwitch's review

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challenging dark emotional informative medium-paced

4.0

An in-depth look at what it means to have IBD and Crohn's disease. Of course, this is one perspective, but it is very eye-opening and informative. It is memoir-like in her journey through her diagnosis, flairs, and recessions, but it also shows the numerous hardships and barriers that the healthcare system in America has that makes treatment difficult--and this is from a person with a lot of privilege compared to most of the country. There are a number of adjacent issues that people with chronic illnesses have to deal with, especially relating to their mental health, and I really appreciated that she dives into these issues. The book also has appendixes that focus on navigating these issues including: reporting a doctor, finding a good therapist, mental health resources, chronic illness and anxiety, how to talk about mental health medication, chronic illness and depression, medical PTSD, and wrongful termination. 

Pick this up if you or someone you know deals with chronic illness and/or IBD or Crohn's disease specifically. I'd also recommend it to anyone looking to learn a little bit more about the chronic illness perspective. 

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madeofmatter's review

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challenging dark emotional funny hopeful informative reflective sad tense medium-paced

5.0

Beatifully written retelling of life with chronic illness. An incredibly useful resource filled with helpful information, tips on how to deal with various situations and tailored humour that hit home. I cannot recommend this book enough.

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ivi_reads_books's review

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emotional informative sad medium-paced

4.5

 This book is part memoir, part practical guide to navigating the U.S. healthcare system and advocating for yourself. It offers valuable insights on finding community, hope, and managing your health by focusing on what you can control.

The author shares her story with honesty and courage, offering readers both guidance and hope in their own health journeys. 

I recommend it to anyone living with a lifelong illness, as well as their family members and friends 

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atokuyama's review

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emotional informative reflective fast-paced

5.0


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rockyroadbutch's review

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emotional hopeful informative inspiring medium-paced

4.75


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rowynoconnor's review

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challenging emotional informative medium-paced

4.75


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katrinarose's review

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emotional hopeful informative inspiring reflective medium-paced

5.0

Part memoir, part self-help, part political/sociological analysis, this was a wonderfully realistic yet hopeful book. As someone who has her same diagnosis (but has not gone through the level of severity she has) I empathized with her harrowing medical trauma. Her writing style kept me hooked. I imagine the self-help aspects to be invaluable for those with severe chronic illness and are written with such tenderness. She also rounds the book out with many statistics and research articles both to infuriate the reader about the state of healthcare in America but also act as a call to action. Since I am able to forget about my diagnosis 90% of the time, I don’t feel I am the exact target audience, however I loved it and would recommend to anyone chronically ill, anyone who has a chronically ill loved one, or anyone interested in the topic of healthcare in America.

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laurenkimoto's review against another edition

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challenging emotional hopeful sad slow-paced

4.0

Why isn’t heart wrenching an option for the mood of the book??

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internationalreads's review against another edition

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challenging dark emotional informative reflective fast-paced

5.0


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wickedgrumpy's review

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emotional hopeful informative reflective slow-paced

3.0

I find myself torn about this book.

I think the thing that frustrates me is that the intended audience switches between the chronically ill, those who are close to chronically ill people, and anyone who is curious about what it's like to live with chronical illness.  To me, that is too broad of a scope.  Since I fit into the first category, I find myself irked when the tone shifts to address the others.

That is to say, it's partly a memoir, partly a self help book, and partly reference material.  I do think that there are some parts that are beneficial and good, but there are others that are so bizarre that I struggled to finish it.  Also, reading it might be a triggering experience.

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